The last couple of days have been so unbelievable that I truly am in an alternate universe. The day before yesterday Randy’s numbers plummeted, and they decided that ECMO would be the best way to go to “bridge” Randy to transplant. The ECMO is taking the place, basically, of the lungs as far as oxygenating Randy’s body. It was all so scary, Randy’s brother had flown in the day before, and Randy’s dad came in just as the episode began. Everyone tells me that these people are miracle makers…all we need are lungs to have a miracle. Tomorrow is Randy’s birthday, and I want him to have lungs tomorrow, so he can take a nice deep breath. I know the road from transplant is hard, but we are up to it, and Randy is so strong and such a perfectionist he would be a UT Southwestern Lung Transplant poster boy. We just need the lungs.
He was wakeful when I went in this morning….but he is being given medications so he will not remember any of this….when he wakes up with lungs he will be surprised at how much time has passed. I do believe he heard my voice, our usual, “good morning my darling” cheerful greeting. I told him he was doing great, his SATs are good, his labs are good….he just needs to keep it up until the lungs come. I was twenty when we met….married at 21, and we have grown up together, more or less….whatever has happened, good or bad, we have been together through it. Even when we’ve been mad at each other, it is only the other one who can truly give us comfort. Does that make sense? We are two pieces of the same two piece puzzle. I pray, I beg, I ask the universe, for lungs, and to bless the donor.
Thank you for posting your wedding picture. You are both so beautiful. I cannot believe how much Wes looks like his daddy. My heart is heavy thinking of what your family is enduring. I am praying so hard for you all. Stay healthy sweetie.
Thank you for your prayers and good wishes. I just know he will get his lungs his birthday is tomorrow
Our hearts go out to you and we pray pray pray Randy gets lungs today.
thank you…..we are still waiting
Tammy I am a cousin of Holly. Her Mom was my husband’s sister. I am so glad you shared your situation with all of us.. Our prayers are with you and yours. My husband , Jeff is in his 6th year of stage 4 CA. He has so much pain. My heart hurts too. Hold on to that faith in the transplant. You may have hear about one. I hope so.
hi Sheryl. Thank you for your prayers. Jeff’s mom was Aunt Juanita, right?
My friend was on waiting for his 2nd transplant. He is a true miracle, he was on ECMO for many mths before his transplant, was in ICU since Christmas and never had his transplant until June. I was very shocked when I went in to see him in April just a few mths pre transplant. He was still exercising, sitting up and talking while on the ECMO, he had a hard struggle, so many times we did not think he would make it. He has CF, and will be back on the road soon to go home.
Tam, I have been reading your posts & wanted you to know our prayers are with you.